Barbara's Ovarian Cancer Story, Part I

Process and SurvivalOn October 30, 2004, I willswollen to "twice it's size" left leg made me cry.
mark an anniversary of sorts. On this date a yearAnd then there was the visit with the discharge
ago, my life changed dramatically. I remembernurse. A nice lady with a friendly smile as she
small details like the doctor's matter-of-fact voicespoke about chemo protocols that I'd be starting
discussing major surgery, chemotherapy, losingin three weeks, all of which would cause loss of
my hair. I remember the "dear-in-the-headlights"hair, eyelashes and eyebrows. I cried. I felt so
look on my husband's face, a look probablycompromised, so vulnerable and SO ANGRY!
mirrored in my own face. I remember the dayPicture an armful of IV's shaking a fist at the sky.
was beautiful, warm and sunny. I don't rememberLooking back, I think finally getting angry and
much of my drive back out to work or exactlycrying was good for me. After all, this wasn't fair,
how I told my co-workers that I scheduled forI didn't deserve this and the whole thing was
surgery in approximately three weeks for whatoverwhelming!The next day was a little brighter. I
was, almost certainly, advanced ovarian cancer.went back to listening to my tapes, practicing my
I've been asked to share some of the things thatmeditation and using the techniques that Sabrina
I found and did that helped me on this journeyand John had taught me for pain and stress relief.
that began almost a year ago.My first reactionThe CT scan was negative. No blood clots. My
was probably pretty standard - DENIAL- "Thisbody was just redistributing fluids. I increased my
can't be happening to me. I'm healthy. I eat right. Iwalks around the halls and the swelling started to
exercise." Then came -ANGER. I had just had adissipate. The pathology report showed, to the
complete physical with my doctor (which includedsurgeon's surprise, that there was no lymph node
the OB-Gyn exam) on August 28th. I had beeninvolvement! I felt like I had gotten an A+. And,
complaining to her for months about bloating,after 10 days of hospitalization, I was going
increased waist size, and fullness. But she hadhome.That first breath of fresh air was heaven!
assured me that everything was fine and thatSan Francisco was at it's prettiest-clear blue sky,
my exam was normal. (How could she havewarm sun on my face and a cool breeze
missed a tumor the size of my fist?) -FEARcaressing my cheeks and tousling my hair. My
followed anger. I have never had surgery.brother carefully loaded me and my pillow into his
Chemotherapy? A nightmare! I don't want to becar and I was, thankfully, on my way home.My
sick. I don't want to lose my hair! What abouthusband, sister Nance and my mom welcomed
work, my family, my LIFE?Fear can be a greatme with a clean house, lots of tasty treats and
motivator. It motivated me to learn as much as Iloving arms. My sister, Laurie, would arrive in a
could about ovarian cancer, the surgery, thefew days. The house would be decorated for
chemotherapy protocols and the newestChristmas and I was preparing to embark on
treatments and clinical studies. Surgery wasphase 2, recovery from surgery and starting
scheduled for November 24th, two days beforechemotherapy.The second part of the story will
Thanksgiving. In the three weeks prior to surgery,be published in a future newsletter. It describes
I organized my work load in my department inthe chemotherapy, finding clinical studies,
preparation for being gone for 6-8 weeks. I spentcomplimentary approaches to beating ovarian
hours gleaning information from the internet andcancer that have been work for Barbara.Ovarian
library. I turned to friends and family for supportCancer: a not so silent killerOvarian cancer has
and positive energy through prayer andlong been considered difficult to detect with vague
visualization. With the help of my husband and asymptoms that look like other conditions such as
very dear friend, Sabrina, I started preparing forIrritable Bowel Syndrome and PMS. I had been
the surgery. We made pre and post operativeexperiencing bloating, gas, fullness, and urinary
tapes for stress relief (anxiety control), relaxation,tract problems for several months. I complained
pain relief, and healing. I practiced visualizing anto my doctor. She suggested dietary changes but
uneventful, no complications, very successfulnever did any follow up testing on me. A simple
surgery with minimal post-op discomfort and rapidblood test called CA-125 would have alerted her
recovery. My daily meditations included messagesto the problem before it had advanced to Stage
of self-healing and images of my powerfulIII. An elevated CA-125 (above 35) is indicative of
immune system already fighting and destroyingovarian cancer, especially in conjunction with the
the cancer cells. I continued to exercise and, inother symptoms I had. New research points to a
fact, went to my favorite exercise class the dayclear sign of the disease: the presence of three
before surgery. Exercise has played a veryspecific symptoms simultaneously- increased waist
important part in my recovery from surgery andsize, bloating or gas, and the urgent need to
chemo. I went into surgery feeling stronger,urinate. Since my diagnosis, several friends and
mentally and physically, almost as if I'd beenmy sister have requested that their doctors do a
preparing for a marathon. In addition to increasedbaseline CA-125, especially, if they had symptoms
exercise that included walking, step class, andof gas or bloating. Fortunately, they are fine. I
weight training, I increased my vitamin intake tourge you to do research, get information and if
boost my immune system and energy levels. Andyou have any symptoms or concerns, talk to
just like an athlete preparing for an event, Iyour doctor and be assertive about what you
endeavored to prepare myself emotionally andwant.Vitamin and supplements that Barbara
spiritually. "I feel myself strong, healthy andresearched and used in her fight with ovarian
completely cancer free, now and forever,"cancer, Phase I.The following is a list of vitamin
became, and still is, my mantra. I gathered all theand supplements that I took to prepare for
good wishes and positive healing energy fromsurgery and to speed post-operative
friends and family like a cloak around me. Ihealing.Vitamin A: 25,000 IU daily- numerous
worked very hard at controlling my fears aboutstudies have shown the beneficial effects of Vit.A
the surgery, chemo and my future instead ofon healing after surgery.Vitamin C: 2,000 mg per
letting the fears control me!The morning ofday- essential for collagen synthesis which is part
November 24th dawned clear and cold. Six AMof normal wound healing.Zinc, magnesium, B
found John and I on our way to UCSF to check inComplex: wound healingVitamin E: speeds
for surgery. I remember feeling somewhathealingHomeopathy:
disconnected to what was happening, surroundedArnica montana 30x, 3-4 pellets twice per day
by a sense of unreality. "I should be getting readyon the day before surgery and also as soon
for work and shopping for Thanksgiving andbefore surgery as possible. Then take them as
decorating the house." Instead, we are speedingsoon as possible in the recovery room. Take for
toward a big unknown. I practiced some1 week following surgery. Arnica is very good at
"grounding" and "centering" techniques that Sabrinapreventing ill effects from any kind of physical
had taught me and kept deep breathingtrauma. Refer to: Women's Bodies, Women's
whenever the "nervous butterflies" flutteredWisdom by Christine Northrup, MD for further
around inside of me.Checking in went smoothly. Ininformation about these and other supplements.
my meeting with the anesthesiologist, I requestedShe also has a script example of four healing
that he follow a script I had written up for him tostatements for the surgeon and anesthesiologist
use while talking to me during the surgery. Thethat I requested they say to me during my
script had messages like: "Everything is goingoperation.I also took Cat's Claw. I found
smoothly, Barbara," you'll wake up feeling minimalinformation about this herb on the internet and
discomfort," You'll have a speedy recovery andstarted taking it as soon as I was diagnosed. I
nor complication." He agreed to my request and Icontinue to take it daily. Cat's Claw is indigenous
was off to surgery.The next few days are a blur,to the Amazon rainforest and other tropical areas
as I was in and out of sedation and on painof South and Central America. It has been used
medication. A few memories do stand out- many,for over 2,000 years by indigenous peoples for a
many beautiful flowers being delivered, gentlevariety of conditions including wound healing,
hands and voices taking care of and reassuringcancer, internal cleansing, and "normalizing" the
me; the faces of my loved ones looking stunnedbody. It has been used in Europe and Peru since
and scared. I must have appeared pretty scarythe early 1990's as an adjunctive treatment for
with tubes and IV's everywhere! All seemed tocancer and AIDs as well as other diseases that
be progressing smoothly until three days beforetarget the immune system.A good information
my discharge. I was alert and moving around mywebsite for further research: Raintree
room, sitting in the chair, and walking the hallways.Nutrition-Tropical Plant Database.Link to Part III
And I experienced my worst day! Up until thatused the guided relaxations/visualizations CD's
time and for what seemed like for weeks, I'dfrom the Stress Education 1. #209 Stress
been consciously putting on a good, strong,Management for Pre and Post-op Survival
positive front. My theory was that the more2. #208 Stress Management for
positive energy would be reflected back to me inHealingReference:
the form of: "It wasn't cancer, but just a benignHealth Update from SELF Magazine by Jennifer
cyst. Well, it is cancer, but we caught it early. TheNelson November, 2004
surgery will go great, and I'll recover quickly. I'll getOvarian cancer: a not-so-silent killer"Early diagnosis
back to my regular life!" That day started with ais crucial. When disease is caught before it
visit from my surgeon. She said I had had Stagespreads, 80 percent of women will survive."by
IIIc ovarian cancer and she did not know if thereBarbara Ehlers-Mason, RN and L. John Mason,
was lymph node involvement. She was waiting forPh.D.Look for Part II .... If you wish more
the report. She said a discharge nurse would beinformation.Stress Education Center (707)
by to discuss chemo, wound care and at home795-2228 website: John Mason, Ph.D. is the author
follow-up. In her exam, the doctor found that myof the best selling "Guide to Stress Reduction."
left leg was very swollen and she was sendingSince 1977, he has offered Executive Coaching
me to have a CT Scan to rule out a blood clot.and Training. His wife, Barbara Ehlers-Mason, RN,
Also, my wound was infected in one area. Shewas diagnosed with Ovarian Cancer in October,
removed a few staples and started me on IV2003. More information will save more women.
antibiotics. The staple removal procedure wasGet your CA-125 blood test as early as possible if
very painful and I cried. Getting in and out of theyou have any question about whether you have
wheelchair and up and down off the table for theOvarian Cancer.Please visit the Stress Education
CT scan was painful and I cried. Looking down atCenter's website at for articles, free ezine signup,
my 13 inch abdominal wound which was stapledand learn about the new telecourses that are
except for a 3 inch open area and seeing myavailable.Please take good care of yourself!